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Well
where do I start ? there has been so much written about
M.E. especially over the last decade, (see Books)
as it was pushed more into the limelight so to speak.
Thanks in part, or should that be "unfortunately"
because it has affected some famous people or members
of their family, and the media being the hungry wolf
that it is, clamoured for their story.
Now
this doesn't mean that you are in any way wiser as to
what M.E. is, I have found that most of these reports
actually skip the real issue of what M.E. is and how
it affects peoples lives, but at least you may through
these reports at least be aware of M.E.
Is
it a new disease ? does it affect a certain age group
? how do you "catch" it ? is it catching ?
is it a brain disease or physical disease ? is it life
threatening ? do Dr's actually know what it is and what
causes it ?. These and more I will try to answer here.
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What
exactly is M.E. then ? Well it's many things depending
on the individual, what can start in some people as
a feeling of fatigue and sore muscles, or maybe they
have just had some sort of illness and are not recovering
like they should, can deteriorate into many other symptoms.
These can be allergies, where before they were never
allergic to anything in their life, an irritable bowel,
though there were never any problems encountered before,
fair enough some medications people are given could
help contribute to that, but I think worry and stress
are the most likely culprits here.
The
inability to walk any distance is quite apparent in
many M.E. "victims", some can walk short distances
but it takes it's toll, it is not a case of they can't
walk, it is just very difficult if every step makes
the pain in your leg muscles worse. Others just cant
walk any distance because when they try they get about
50 yards and their legs just go from under them, or
they cant walk far because they have dizzy turns or
giddy spells, both common with M.E. Or maybe they suffer
from severe chest pains and with every step these pains
get worse, and they just cant go any further, it could
be a mixture of these reasons, and there are some who
can only get about thanks to a wheelchair.
Most
people with M.E. find it hard to concentrate for any
length of time, where once they would read a book from
front to back in a day, they are lucky now if they can
manage a chapter in a week, this like all other M.E.
symptoms seems to vary from person to person. Short
term memory seems to be another common problem, ask
me what I did twenty years ago and I'll tell you, but
please don't ask me what the heck I was doing twenty minutes
ago as I haven't got a clue.
The
one thing for sure that unites most people who have
M.E. is fatigue and pain, having no energy to do even
the most mundane task, anything physical usually results
in putting them right back at the bottom of their attempt
at recovery. It's a nasty situation to be in, the temptation
is to get up and do something when you are having a
"good day" but this can be like grabbing a
double edged sword, if your lucky it will only have
a minimal effect on your health, but for many it is
just as likely to put them right back at square one.
What
do people class as a "good day"? well I personally
grade my days from "1" to "10".
The way I class this is "1" being the worst
of days and "10" being the idea of perfect
health (I wish). If I get a day of "5", that
is a good day, a "6" is a "hey no pain
day" a "7" is a "I just know I'm
going to suffer for this day" (a "7"
day is very rapidly followed by "5,4,3,2,1",
days, mostly "7" straight to "1")
and an "8" day is, well if I ever have one
I will announce it here.
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